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Although various organisations have endorsed the principle of providing the scientific community with access to individual participant data from clinical trials, and several initiatives promote data sharing and have provided recommendations, a global consensus is needed. Within the H2020-funded CORBEL project, ECRIN (the European Clinical Research Infrastructure Network) working with a large, international group of experts, produced a consensus document listing clear, broadly based and pragmatic recommendations supporting the sharing and reuse of individual-participant data from clinical trials. The CORBEL project continued its webinar series debating these recommendations on Feb 27, 2018 at 3.30 PM.
Transparency and open access to research data is a key feature of modern research policy, impacting data quality and the robustness of results, and allowing the optimal use of data generated by research projects.
Although the forms may vary across disciplines, the theme of data accountability and transparency applies broadly to any type of research activity. It is of particular importance for research receiving public funding like that promoted by the JPI HDHL. The debate around transparency in clinical trials involves additional factors (e.g. consent and protecting privacy) and many different stakeholders. The CORBEL webinar series aims to address challenges like that and share best practices between biological and medical research infrastructures. The series is aimed at technical operators of RIs and is aligned with the CORBEL competency framework. It include an audience Q&A session during which attendees can ask questions and make suggestions.
All webinars are recorded and are available for later viewing.
Register for the webinar.

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